Programs & Events
Spina Bifida Programs & Events
We are currently restructuring all of our Programs & Events. Below are general descriptions that might change as we upgrade.
|Direct Aid: Year Round|
The Direct Aid program provides limited financial support Spina Bifida related expenses not covered by insurance. Funding will restart in June 2017.
|Spina Bifida Awareness Month: October|
Awareness and education about Spina Bifida is presented to the public through Lunch & Learn presentations.
|Education Day: February|
Medical professionals from Children’s Hospital Colorado with expertise in neurosurgery, neurology, psychiatry, and neuropsychology discuss issues related to Spina Bifida such as urological care, home modifications, Finding Your Normal, and pediatric urology. This one-day educational conference is held at Children’s Hospital Colorado. Presentations are also made by parents of children with Spina Bifida and by adult Board members with Spina Bifida.
|Exploring Transitions: July|
An Educational Forum where the Spina Bifida community explores topics relevant to becoming an empowered and confident adult with a visible and disabling birth defect. Issues such as bracing and mobility issues, helping children transition, hydrocephalus and spinal cord function, mental health programs, catheter and urinary tract infections, resources, and pressure sores and are led by professionals and discussed through group discussions.
|BEST (Boys, Esteem, Success & Training): August|
This weekend camp is focused on helping young boys with Spina Bifida, ages 13-19, talk about issues that might be difficult to discuss with mom and dad, such as puberty, sexuality, girls, and getting through high school and college. Round Table discussions are led by adult mentors with Spina Bifida. Mentors share their personal experiences and resolutions to embarrassing or difficult situations. Boys are shown how to build self-confidence and how to confidently embrace their abilities, individuality, and masculinity.
|BLING (Better Living N’ Girls): August|
This weekend camp is focused on helping young girls with Spina Bifida, ages 13-19, talk about issues that might be difficult to discuss with mom and dad, such as puberty, sexuality, boys, and getting through high school and college. Round Table discussions are led by adult mentors with Spina Bifida. Mentors share their personal experiences and resolutions to embarrassing or difficult situations. Girls are shown how to build self-confidence and how to confidently embrace their abilities, individuality, and femininity.
|Spina Bifida Facebook Group: Year Round|
The Spina Bifida Facebook Group is a place to network, find encouragement and support, and to celebrate accomplishments of those with Spina Bifida. It is a place to remove the feelings of being alone.
|Spina Bifida Support Group: Year Round|
The Spina Bifida Support Group is a place for those with Spina Bifida and their families to meet and discuss hurdles related to Spina Bifida and resolutions to difficult problems and situations.
|Playgroups: Year Round|
Playgroups help children up to 10 years of age to get to know each other in a smaller, more casual setting. Playgroups allow parents to share ideas, advice, and experiences. When families connect to support each other, they realize they are not alone and can thrive.
|Gift Baskets, Memorials & Sympathies: Year Round|
Gift baskets are provided to parents of a child born with Spina Bifida as encouragement, for accomplishments, , as memorials, and for other reasons to provide support and encouragement to those affected by Spina Bifida.
|Mentor Program: Year Round|
Mentors are the life-blood of the Spina Bifida Association of Colorado and have direct involvement in Spina Bifida programs. They assist the organization in implementing the hands-on projects that prepare those with Spina Bifida to live with their disabilities. Mentors provide guidance, knowledge and experience.
|Volunteer Program: Year Round|
One of the biggest benefits individuals receive from volunteering is the satisfaction of incorporating service into their lives and making a difference in their community. Volunteering produces intangible benefits such as a sense of accomplishment and pride. Volunteer training educates volunteers on how to support our Programs & Events.
The latest on Spina Bifida research will be presented. The first Adult with Spina Bifida Survey will be released this year. Health Care Guidelines, Guidelines Clinicians will use to treat Spina Bifida over the next several years, are developed.
|National Conference: June|
Research updates and advancements in spinal surgery and neurology are presented. The 2016 keynote speaker was the first female neurosurgeon with Spina Bifida. Vanderbilt University provided an update on Spina Bifida research.
|Walk-N-Roll®: May 6, 2018|
The Walk-N-Roll® for Spina Bifida is our most important fundraiser. Held in Washington Park, the Walk-N-Roll® is a family-friendly walking event. It is designed to raise awareness of Spina Bifida and celebrates accomplishments of Americans born and living with Spina Bifida. The Walk-N-Roll® is designed to build the local Colorado community and raise financial support for people living with Spina Bifida. Volunteers are needed and appreciated!
|Harvest Moon Festival: October|
The Harvest Moon Festival is an elegant signature fall fundraising Event, held at Hudson Gardens. Sip fine wines and sample gourmet chocolates. Hors d’oeurves and beverages are served during a silent auction. A live auction and a “wall of wine” event will peak your interest. Proceeds raised through the Harvest Moon Festival are critical to the implementation of all Spina Bifida Association of Colorado Programs & Events.
No Barriers Summit: June
This outdoor adaptive sports summit is sponsored by No Barriers and supported by Spina Bifida Association. The summit is held at Copper Mountain. Activities such as horseback riding, zip lining, rafting, sailing, kayaking, and cross country biking are offered. Sports camps such as basketball, tennis and softball are held. Not only does this summit provide well needed exercise for those with Spina Bifida, but it also helps with the chronic depression that also accompanies Spina Bifida.
Stars of Tomorrow Camp: June
This 2-day camp, held at Sloan’s Lake, is sponsored by Adaptive Adventures and supported by Spina Bifida Association. Over 30 youth with Spina Bifida and other disabilities enjoy water sports such as tubing, cycling, kayaking, and sailing. This Event helps give mental health relief to those affected by the daily stressors related to Spina Bifida.
Frosty Festivities: December
A Holiday Party in a fun-filled environment where Spina Bifida families can socialize and celebrate the Holidays. Frosty Festiviteis includes food, drinks, games, and activities. Santa brings children under 12 years old a special gift!
Teen Day: September 29
A day long retreat for teens and young adults where they can learn about being a teen with SB, dreams, goals after high school, college education, relationships, etc from adults with SB who have been there, done that! For more information or to RSVP, please contact Cheryl Veenstra at email@example.com or 303-807-3219.
Junior Wheelchair Sports Camp: June 11 - June 15
This week long day camp will be held at Gateway High School in Aurora. It is collaboratively sponsored by the Colorado Sports for Physically Challenged and Spina Bifida Association of Colorado. This is the 35th year of this camp. Over 120 individuals participate, ages preschool-21. For more information, please click here or email firstname.lastname@example.org
Water Sports Day: July
A one-day water sports day for youth with Spina Bifida and their siblings to experience the thrill of water sports such as water-skiing, wakeboarding, paddle boarding, tubing, and kayaking in a safe, social, and non-intimidating environment.
Summer Picnic: August 25
This annual picnic in Colorado Springs provides opportunities for the Spina Bifida community to network and socialize at an adaptive park with an accessible playground and splash pad. Please click here for more details!