About Us

The mission of the Spina Bifida Association of Colorado is to build a better and brighter future for all those affected by Spina Bifida.

 

We pursue our Mission by educating the public about the latest research on prevention, ex. the intake of folic acid before and during pregnancy.  For those individuals and families already affected we bring them together through multiple activities to see they are not alone in their fight, that we are a community.  We have individuals in their 70’s and younger living with Spina Bifida, we can learn from each other how to get through the different stages of life.  We learn how to prevent common medical issues, how to get through school with common learning conditions, how to pursue higher education, job, relationships etc.

Join us and support Spina Bifida Association of Colorado to educate the world about Spina Bifida and to enhance the lives of people in our community by bringing them together.

Meet Our Board

Board Officers

Danielle Lammon

Board President

Danielle is the owner of the Danielle Shannon Agency – Allstate Insurance in Aurora & Durango. She is a mother of four children and has been happily married to her best friend for 24 years. Danielle is continually empowering others to make a positive impact in our community and to leave a legacy.

Danielle was appointed to the Aurora Citizens Advisory Budget Committee, is a board member on the City of Aurora Park & Recreation Commission, Rotarian, and a member of the Aurora Chamber of Commerce Ambassador Team. She is a Co-Founder of the Driven Dames and Co-Creator of the 5K Method.

Sam Hardin

Secretary

(They/Them/Theirs) is a local artist, student, advocate, and mentor. They were born in Sacramento, California and lived their early years in Roseville California. They now live in Colorado Springs, Colorado. Their work has been showcased in the Arbitrarium, an alternative style thrift store in Colorado Springs. Sam has been a student at Pikes Peak State College, previously known as Pikes Peak Community College, since 2014 going for their Applied Science with a focus on Multimedia Graphic Design. They started their love for art in high school when they took a photoshop class their freshman year. They then continued their interest their junior year by attending the area vocational program and attending Pikes Peak State College. Sam’s work includes a number of acrylic paintings, graphite drawings, and logos created in Adobe Photoshop, Illustrator, and InDesign.

Chris Moore

Treasurer

Chris Moore is honored to serve on the board of Spina Bifida of Colorado, where he brings together his professional expertise in healthcare with a deep personal commitment to supporting families navigating complex medical conditions. His work focuses on expanding access to genetic services and advancing health equity for underserved communities, especially those impacted by rare diseases. Chris believes in the power of advocacy, community, and innovation to create lasting change—and is proud to contribute to an organization that shares those values.

Maura Zazenski

Director

Maura has been supporting people with disabilities since the 1980s because of her children. She founded four support groups in Colorado and Montana over the years and developed a software program for understanding disease states and medication compliance. She joined the Spina Bifida Association of Colorado Board to continue to assist individuals with disabilities through volunteering, fundraising, and event planning.

Ivey Turner

Director

I am in the process of applying for Cosmetology school at International Salon and Spa and I am a professional singer who has been in multiple choirs including the Colorado Springs Children’s Chorale. I currently live in Colorado Springs.

Sarah Trainor

Director

My name is Sarah Trainor Shepherd.  I’m the nurse clinical specialty coordinator for the spina bifida program at Children’s Hospital Colorado.  I have been a nurse at Children’s Hospital Colorado for 25 years. I have a passion for helping the spina bifida population and love my job.  My husband and I live in Denver and have  3 teenagers. I grew up on a cattle ranch in southeastern Colorado and love the outdoors. I enjoy cooking, gardening, and taking care of my animals.

Shekinah Metzger

Director

Shekinah is a dedicated and strategic leader with a background in property management and operations. She is the mother of two young boys, one of which has Spina Bifida. She grew up in Colorado and married her wonderful husband almost four years ago. She brings valuable insight and passion to building a better and brighter future for all affected by Spina Bifida. Shekinah is blessed to currently stay home with her toddlers. When she is not chasing them around, you can find her biking, reading, or enjoying a warm beverage at a local coffee shop.

Ulises Arnold

Director

I am an HR Generalist at PASCO Home Health, where I’ve been proudly working since 2022. Originally from Texas, I’ve called the Denver area home since 2016. Outside of work, I’m a proud cat dad with a deep love for comic books and films. Being bilingual in both English and Spanish has allowed me to connect with a diverse range of people and offer support in meaningful ways. I’m passionate about making the world a better place by helping individuals believe in themselves and recognize their potential, whether through personal connections or professional efforts.

Nan Alonso

Executive Director

Nan is a dedicated and experienced professional specializing in non-profit and small business project management, board development, and organizational systems. With a strong background in the non-profit sector, Nan has brought her business management, creativity and solutions-oriented approach of problem solving to SBACO. She loves to plan exciting networking and fundraising events and is passionate about building support for and working with the Colorado Spina Bifida community. She loves to travel and visit her family scattered all over the country.

Interested in joining our board? Get in touch with us today!