About Us

The mission of the Spina Bifida Association of Colorado is to build a better and brighter future for all those affected by Spina Bifida.

 

We pursue our Mission by educating the public about the latest research on prevention, ex. the intake of folic acid before and during pregnancy.  For those individuals and families already affected we bring them together through multiple activities to see they are not alone in there fight, that we are a community.  We have individuals in their 70’s and younger living with Spina Bifida, we can learn from each other how to get through the different stages of life.  We learn how to prevent common medical issues, how to get through school with common learning conditions, how to pursue higher education, job, relationships etc.

Join us and support Spina Bifida Association of Colorado to educate the world about Spina Bifida and to enhance the lives of people in our community by bringing them together.

Meet Our Board

Danielle Lammon, Chair

Danielle is the owner of the Danielle Shannon Agency – Allstate Insurance in Aurora & Durango. She is a mother of four children and has been happily married to her best friend for 24 years. Danielle is continually empowering others to make a positive impact in our community and to leave a legacy.

Danielle was appointed to the Aurora Citizens Advisory Budget committee, is a board member on the City of Aurora Park & Recreation Commission, Rotarian, and a member of the Aurora Chamber of Commerce Ambassador Team. She is a Co-Founder of the Driven Dames and Co-Creator of the 5K Method.

Board Officers

Jill Robotham, Secretary

Jill was born and raised in Connecticut and after her high school graduation took a 2000-mile step to the University of Denver. Graduation came with a BA in American Studies and a minor in Child Psychology. After working in daycare, and 10 years at Oppenheimer Asset Management, managing customer service areas, she then started a career with U S Bank, in Denver, CO in 1990. Her 30-year career in financial industry, ended when she retired in December, 2018.

Jill and her husband and have 2 adult children with families of their own including 4 beautiful grandchildren. Their youngest grandson was born with Spina Bifida not caught during pregnancy. They learn new things every day, from SBACO activities and mostly taught by a young man with the best attitude around.

Mark Deschamp, Past Board Chair

Mark is the Past President/Board Chair of the Spina Bifida Association of Colorado. Mark joined the Spina Bifida Association of Colorado in November 2013 and became Board Chair in January 2015. Mark changed the direction of the Spina Bifida Association of Colorado to be more than just a support group. Through his leadership, the needs of adults are now included and the program, activities and education have been expanded to address the needs of the Spina Bifida community.

Mark holds a Bachelor’s degree in Business Administration, with an emphasis in Management, from the University of Northern Colorado. Mark works full time as a Durable Medical Equipment Sales Representative for TRG, Townsend Rep Group, covering Colorado and southern Wyoming. Townsend Rep Group provides a service that delivers the highest quality products available in mobility equipment. Their products and services are tailored to fit individual needs while exceeding expectations.

Mark is an adult with Spina Bifida. He grew up in Lakewood/Littleton, Colorado and has been actively involved in the disabled community his entire life. He is avidly involved in playing sports and organizing and participating in events. Mark is passionate about mentoring and helping others with disabilities, especially kids with Spina Bifida. Mark helps those with Spina Bifida improve their self-esteem and become independent.

Mark serves as an advisor for the Spina Bifida Association of Colorado with regard to mobility equipment such as wheelchairs and seating systems. He is a liaison to community partners and donors that provide equipment and recreational/competitive sports opportunities for the Spina Bifida Association of Colorado community.

In his free time Mark loves to travel. He has visited several countries and spends time outdoors in this beautiful state.

Jackie Miller, Event Coordinator

Keloa Lobato, Treasurer

Beth Hasse

Beth is the program coordinator for the Spina Bifida outpatient clinic at Children’s Hospital Colorado. She has been in this position for 5 years and this is her second year on the board. She keeps active with her three teenagers and loves to be active outdoors.

Stephany Robotham

Stephany was born into a military family in Texas, moved to Nevada and Arizona before transplanting to Colorado in the early 90s. After graduating High School, she earned her Bachelor of Science in Nursing Degree, got married and has 2 children, a boy and a girl. Her son was born with Spina Bifida unbeknownst to anyone until his delivery. It was soon after his birth that she became aware of the Spina Bifida Association of Colorado and the tremendous assistance that they provide to not only people living with Spina Bifida but to their families as well.

She is a Co-President of the Parent Volunteer Committee at her kids’ charter school. In her free time, Stephany loves to go boating and camping with her family and friends in the summertime but pretty much stays indoors during the wintertime as she is a southerner at heart. However, she loves to go thrift shopping for antiques and treasures all the time and it is her dream to own a profitable booth at an Antique Mall someday.

John Anderson

Nicole Cantrell

Jolene Cranston

Interested in joining our board? Get in touch with us today!